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RECRUITINGOBSERVATIONAL

Longitudinal Study of Neurodegenerative Disorders

Important: This information is not medical advice. Talk to your doctor about whether a clinical trial is right for you.

About This Trial

The purpose of this study is to understand the course of rare genetic disorders that affect the brain. This data is being analyzed to gain a better understanding of the progression of the rare neurodegenerative disorders and the effects of interventions.

Who May Be Eligible (Plain English)

Who May Qualify: - Any patient with a genetic neurodegenerative disorder Who Should NOT Join This Trial: - none Always talk to your doctor about whether this trial is right for you.

Original Eligibility Criteria

View original clinical language
Inclusion Criteria: * Any patient with a genetic neurodegenerative disorder Exclusion Criteria: * none

Treatments Being Tested

OTHER

Palliative Care

Collecting information about the natural progression of these diseases

BIOLOGICAL

Hematopoetic Stem Cell Transplantation

Following patients who have received HSCT as part of their clinical care.

Locations (1)

UPMC Children's Hospital of Pittsburgh
Pittsburgh, Pennsylvania, United States