RECRUITINGOBSERVATIONAL
Investigating Management, Perspectives and Attitudes Towards Care in Takayasu Arteritis
About This Trial
This study aims to understand the experiences of patients with Takayasu arteritis (TAK) and how physicians manage the condition. To achieve this, two separate questionnaires will be conducted: one for patients and one for physicians.
Who May Be Eligible (Plain English)
Who May Qualify:
For the patient questionnaire:
- Age ≥ 18 years
- A formal diagnosis of TAK
For the physician questionnaire
• A physician involved in the management/decision-making for patients diagnosed with TAK
Who Should NOT Join This Trial:
For the patient questionnaire:
- Age \< 18 years
- Lack of a formal diagnosis of TAK
- Patients without mental capacity or willingness to provide willing to sign a consent form
- Not UK based
For the physician questionnaire
- Not involved in the management/ decision making for patients diagnosed with TAK
- Not willing to take part
- Not UK based
Always talk to your doctor about whether this trial is right for you.
Original Eligibility Criteria
View original clinical language
Inclusion Criteria:
For the patient questionnaire:
* Age ≥ 18 years
* A formal diagnosis of TAK
For the physician questionnaire
• A physician involved in the management/decision-making for patients diagnosed with TAK
Exclusion Criteria:
For the patient questionnaire:
* Age \< 18 years
* Lack of a formal diagnosis of TAK
* Patients without mental capacity or willingness to provide informed consent
* Not UK based
For the physician questionnaire
* Not involved in the management/ decision making for patients diagnosed with TAK
* Not willing to take part
* Not UK based
Treatments Being Tested
OTHER
Questionnaire
An online annoymous questionnaire consisting of short-answer and multiple-choice questions
Locations (1)
University of Edinburgh
Edinburgh, United Kingdom