RECRUITINGOBSERVATIONAL
Diagnostic Journey, Patient Experience, and Disparities in the Treatment of Spinal Muscular Atrophy (SMA) in the MedStar Health System
Understanding the Diagnostic Pathway and Treatment Experience of Patients With Spinal Muscular Atrophy (SMA)
About This Trial
Evaluate the diagnostic journey, patient experience, and disparities in the treatment of Spinal Muscular Atrophy (SMA) in the MedStar Health System.
Who May Be Eligible (Plain English)
Who May Qualify:
- SMA diagnosis, age greater than or equal to 18 years
Who Should NOT Join This Trial:
- Deceased
Always talk to your doctor about whether this trial is right for you.
Original Eligibility Criteria
View original clinical language
Inclusion Criteria:
* SMA diagnosis, age greater than or equal to 18 years
Exclusion Criteria:
* Deceased
Treatments Being Tested
BEHAVIORAL
Telephone Interview
Telephone interviews to gather qualitative data on SMA patients' diagnostic journey, access to treatment and barriers encountered, understanding of their disease, and quality of life measures
Locations (1)
MedStar Health Research Institute
Washinton, District of Columbia, United States