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RECRUITINGOBSERVATIONAL

Follow-up of NIV At Home in Patients with Duchenne Muscular Dystrophy

Important: This information is not medical advice. Talk to your doctor about whether a clinical trial is right for you.

About This Trial

The aim of this study is to verify whether full video home polysomnography (sleep study) with nocturnal transcutaneous CO2 monitoring is feasible in the follow-up of non-invasive ventilation (NIV) in patients with Duchenne muscular dystrophy. The researchers would like to investigate whether they could perform sufficient measurements in the home situation and see if correct decision for further treatment could be made. Furthermore, the researchers will make an analysis on the minimal requirements of measurements to make a correct decision for the treatment of these patients.

Who May Be Eligible (Plain English)

Who May Qualify: - Patients with DMD \> 18 years using NIV - Signing the written willing to sign a consent form Who Should NOT Join This Trial: - / Always talk to your doctor about whether this trial is right for you.

Original Eligibility Criteria

View original clinical language
Inclusion Criteria: * Patients with DMD \> 18 years using NIV * Signing the written informed consent Exclusion Criteria: * /

Treatments Being Tested

DIAGNOSTIC_TEST

Monitoring of NIV at home

Monitoring of NIV at home

Locations (1)

Universitaire Ziekenhuizen KU Leuven
Leuven, Vlaams-Brabant, Belgium