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RECRUITINGOBSERVATIONAL

A Longitudinal Study of Severe and Enduring Eating Disorders

Important: This information is not medical advice. Talk to your doctor about whether a clinical trial is right for you.

About This Trial

The goal of this observational longitudinal study is to investigate characteristics and factors associated with the development of Severe and Enduring Eating Disorders (SEED). In this project, the researchers will follow two prospective cohorts of patients with eating disorders (ED), one adolescent (ages 14-17) and one adult (ages 18+), in terms of change in and impact of clinical, psychological, and biological risk factors. Data will be collected at baseline, after treatment, two years after baseline, and thereafter five, 10 and 20 years after baseline. Participants will be asked to undergo a physical examination, leave blood samples, be interviewed, and fill in questionnaires. If the participants are minors, their care takers will also fill in the questionnaires. The study aims to explore how clinical, psychological, and biological risk factors-including comorbidity, personality characteristics, difficulties with emotion regulation (ER), cognitive inflexibility, loneliness, severe ED symptoms, and inflammatory activation-contribute to a chronic course of the disorder.

Who May Be Eligible (Plain English)

Who May Qualify: - found to meet the criteria for an eating disorder - being in need of treatment - having provided written willing to sign a consent form (for minors, this includes consent from all caregivers and the minors themselves). Who Should NOT Join This Trial: - Eating disorders symptoms in need of emergency care - High risk for suicide - An inability to respond to the questionnaires due to e.g., lack of knowledge in Swedish. Always talk to your doctor about whether this trial is right for you.

Original Eligibility Criteria

View original clinical language
Inclusion criteria: * found to meet the criteria for an eating disorder * being in need of treatment * having provided written informed consent (for minors, this includes consent from all caregivers and the minors themselves). Exclusion criteria: * Eating disorders symptoms in need of emergency care * High risk for suicide * An inability to respond to the questionnaires due to e.g., lack of knowledge in Swedish.

Locations (1)

Uppsala University Hospital
Uppsala, Sweden