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RECRUITINGINTERVENTIONAL

Measurement Properties in People with Hemophilia

Measurement Properties (Reliability and Validity) of a Set of Assessments Evaluating Physical Function in People with Hemophilia

Important: This information is not medical advice. Talk to your doctor about whether a clinical trial is right for you.

About This Trial

The aim of this project is to determine the measurement properties (namely reliability and validity) of a set of clinical assessments, measuring different aspects of physical function.

Who May Be Eligible (Plain English)

Who May Qualify: - Diagnosed Hemophilia Types A or B - Adult people ≥ 18 years - Patients on prophylactic factor or non-factor replacement treatment, or on demand factor replacement treatment. - Able to walk for 20 meters independently, with or without walking aid - Signed willing to sign a consent form to participate in the study Who Should NOT Join This Trial: - Severe health conditions like severe cardiovascular, pulmonary, neurological or musculoskeletal diseases. - Unable to perform the assessments due to disability or language problems. Always talk to your doctor about whether this trial is right for you.

Original Eligibility Criteria

View original clinical language
Inclusion Criteria: * Diagnosed Hemophilia Types A or B * Adult people ≥ 18 years * Patients on prophylactic factor or non-factor replacement treatment, or on demand factor replacement treatment. * Able to walk for 20 meters independently, with or without walking aid * Signed informed consent to participate in the study Exclusion Criteria: * Severe health conditions like severe cardiovascular, pulmonary, neurological or musculoskeletal diseases. * Unable to perform the assessments due to disability or language problems.

Treatments Being Tested

OTHER

Measurement Properties (Reliability and Validity) of a Set of Assessments evaluating Physical Function in adult Participants with Hemophilia

This study evaluates the reliability (Test-Retest) of six health related instruments that assess physical function in people with hemophilia: Short Physical Performance Battery, Unipedal Stance Test, Four Square Step Test, Timed up and Go, 1 kg Arm Lift Test, 30 Second Chair Stand Test. This study is needed to determine the psychometric properties of these six assessments. Validity of these test will be determined with the Short Form 36, the Hemophilia Activities List and the Hemophilia Joint Health Score Methodology: Reliability (Test re-test study and validity (cross sectional study) of the six tests reported in patients with hemophilia. This intervention contains physiotherapie assessments, however, no drugs nor medical devices.

Locations (1)

Ruud Knols
Zurich, Switzerland