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Synovial Sarcoma Registry / Biospecimen Repository

Synovial Sarcoma Registry and Biospecimen Repository

Important: This information is not medical advice. Talk to your doctor about whether a clinical trial is right for you.

About This Trial

The purpose of this study is to collect and store data and samples for future research to attempt to improve outcomes for patients with synovial sarcoma. The future research will involve various types of genetic testing. Participants will be asked to allow access to medical records and leftover tumor tissue and may be asked to give a blood or saliva sample. Participants will also be asked to completed questionnaires about their medical history and may be contacted every 6 to 12 months for updates for up to 10 years.

Who May Be Eligible (Plain English)

Who May Qualify: 1. Males or females of any age 2. Reported diagnosis of synovial sarcoma 3. willing to sign a consent form from subject (aged ≥18 years) or parent/guardian Who Should NOT Join This Trial: 1. Individuals with sarcomas that do not fit the definition of those considered for this registry 2. Individuals who are unwilling to participate 3. Individuals who are unwilling or unable to provide written consent Always talk to your doctor about whether this trial is right for you.

Original Eligibility Criteria

View original clinical language
Inclusion Criteria: 1. Males or females of any age 2. Reported diagnosis of synovial sarcoma 3. Informed consent from subject (aged ≥18 years) or parent/guardian Exclusion Criteria: 1. Individuals with sarcomas that do not fit the definition of those considered for this registry 2. Individuals who are unwilling to participate 3. Individuals who are unwilling or unable to provide written consent

Locations (1)

Children's Hospital of Philadelphia
Philadelphia, Pennsylvania, United States