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RECRUITINGOBSERVATIONAL

Registry Study of Assistive Devices, Medicines and Healthcare Measures in ALS, SMA and Other Neurological Diseases.

Registry Study of the Provision of Assistive Devices, Medicines, and Other Healthcare Measures in an Inter-cohort Observation of Patients With ALS , SMA and Other Neurological Diseases.

Important: This information is not medical advice. Talk to your doctor about whether a clinical trial is right for you.

About This Trial

This registry study aims to collect data on the provision of assistive devices, medicines, and other healthcare measures, such as ventilation therapy and nutrition support, in patients with Amyotrophic lateral sclerosis (ALS), Spinal muscular atrophy (SMA) and other neurological disorders. The data collected should describe the clinical practice, meaning real-world evidence and patient-reported outcomes.

Who May Be Eligible (Plain English)

Who May Qualify: Diagnosis of a chronic neurological disease - Who Should NOT Join This Trial: Lack of cooperation and unwillingness to store and share medical data collected in the registry study \- Always talk to your doctor about whether this trial is right for you.

Original Eligibility Criteria

View original clinical language
Inclusion Criteria: Diagnosis of a chronic neurological disease - Exclusion Criteria: Lack of cooperation and unwillingness to store and share medical data collected in the registry study \-

Locations (16)

Christoph Münch
Berlin, Germany
Neurologische Klinik und Poliklinik, Universitätsklinikum Bergmannsheil
Bochum, Germany
Klinik für Neurodegenrative Erkrankungen und Gerontopsychiatrie, ALS-Ambulanz und Huntington Ambulanz, Universitätsklinikum
Bonn, Germany
Klinik und Poliklinik für Neurologie, Medizinische Fakultät Carl Gustav Carus, Technischen Universität Dresden
Dresden, Germany
Neurologische Klinik, ALS-Ambulanz, Alfried Krupp Krankenhaus Rüttenscheid, Essen
Essen, Germany
Klinik für Neurologie, Universitätsmedizin, Georg-August-Universität Göttingen
Göttingen, Germany
ALS- und Muskelambulanz, Medizinische Hochschule Hannover
Hanover, Germany
Neurologie und Poliklinik, Universitätsklinikum
Heidelberg, Germany
Ambulanz für Neuromuskuläre und Motoneuron-Erkrankungen, Universitätsklinikum Jena
Jena, Germany
Klinik und Poliklinik für Neurologie
Leipzig, Germany
Klinik für Neuroogie-Präzisionsneurologie, Universitätsklinikum Schleswig-Holstein, Universität zu Lübeck
Lübeck, Germany
Neurologisches Klinik, Ambulanz für Motoneuronerkrankungen und ALS, Diakonissenkrankenhaus
Mannheim, Germany
Universitätklinikum
Mannheim, Germany
Klinik und Poliklinik für Neurologie, Klinikum rechts der Isar der Technischen Universität München
München, Germany
Klinik für Schlafmedizin und Neuromuskuläre Erkrankungen, Westfälische Willhelms-Universität Münster
Münster, Germany
Klinik für Innere Medizin, Neurologie, UKM Marienhospital Steinfurt
Steinfurt, Germany