RECRUITINGOBSERVATIONAL
Natural History of SMA
Natural History of SMA: Long Term Longitudinal Study and Development of a Registry
About This Trial
This is an investigator initiated observational study with the aim to record several aspects of function, care and adverse events in a large cohort of SMA patients followed longitudinally by using a structured academic disease registry.
Who May Be Eligible (Plain English)
Who May Qualify:
all patients
Who Should NOT Join This Trial:
if enrolled in clinical trials
Always talk to your doctor about whether this trial is right for you.
Original Eligibility Criteria
View original clinical language
Inclusion Criteria:
all patients
Exclusion Criteria:
if enrolled in clinical trials
Locations (5)
Istituto Gaslini
Genova, Italy
Nemo Sud
Messina, Italy
Centro Clinico nemo
Milan, Italy
Ospedale Bambino gesu
Rome, Italy
Policlinico gemelli
Rome, Italy