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RECRUITINGOBSERVATIONAL

International Rare Brain Tumor Registry

Important: This information is not medical advice. Talk to your doctor about whether a clinical trial is right for you.

About This Trial

The objective of the International Rare Brain Tumor Registry (IRBTR) is to better understand rare brain tumors through the collection of biospecimens and matched clinical data of children, adolescents, and young adult patients diagnosed with rare brain tumors.

Who May Be Eligible (Plain English)

Who May Qualify: - Patients with a known or suspected CNS Sarcoma. - Patients with a known or suspected BCOR-altered brain tumor - Patients with a known or suspected Astroblastoma/NM-1 altered brain tumor - Patients with known or suspected histologically ambiguous/unclassifiable brain tumor - Patients with a known or suspected rare brain tumor. - Signed willing to sign a consent form by patient/ parent or guardian (assent where applicable) to participate in the study. Who Should NOT Join This Trial: - The patient has an extra-CNS primary tumor. - The patient is older than 46 years of age at diagnosis. - The patient or family is not willing to participate or does not sign willing to sign a consent form. Always talk to your doctor about whether this trial is right for you.

Original Eligibility Criteria

View original clinical language
Inclusion Criteria: * Patients with a known or suspected CNS Sarcoma. * Patients with a known or suspected BCOR-altered brain tumor * Patients with a known or suspected Astroblastoma/NM-1 altered brain tumor * Patients with known or suspected histologically ambiguous/unclassifiable brain tumor * Patients with a known or suspected rare brain tumor. * Signed informed consent by patient/ parent or guardian (assent where applicable) to participate in the study. Exclusion Criteria: * The patient has an extra-CNS primary tumor. * The patient is older than 46 years of age at diagnosis. * The patient or family is not willing to participate or does not sign informed consent.

Locations (10)

Children's Hospital Los Angeles
Los Angeles, California, United States
University of California San Francisco
San Francisco, California, United States
Children's National Hospital
Washington D.C., District of Columbia, United States
Ann & Robert H. Lurie Children's Hospital of Chicago
Chicago, Illinois, United States
Akron Children's Hospital
Akron, Ohio, United States
Cincinnati Children's Hospital Medical Center
Cincinnati, Ohio, United States
Rambam Health Care Campus
Haifa, Israel
Schneider Children's Medical Center- CLALIT Health Services
Petah Tikva, Israel
Dana-Dwek Children's Hospital- Tel Aviv Medical Center
Tel Aviv, Israel
The Sheba Medical Center
Tel Litwinsky, Israel