RECRUITINGOBSERVATIONAL
CureDuchenne Link®: A Resource for Research
CureDuchenne Link®: A Resource to Support Research Studies in Duchenne and Becker Muscular Dystrophy (DMD/BMD)
About This Trial
CureDuchenne link is a data hub comprised of integrated biospecimens, clinical data, and self- and/or caregiver-reported information from participants. Anyone over 4 weeks old who has been diagnosed with DMD or BMD or who is a carrier of DMD or BMD can join. Parents or legal guardians can sign up their child(ren).
Who May Be Eligible (Plain English)
Who May Qualify:
1. Any of the following are true:
1. Currently has a confirmed diagnosis of DMD/BMD based on genetic testing, muscle biopsy, or clinical diagnosis.
2. Currently has a confirmed diagnosis of carrier status for DMD/BMD based on genetic testing.
2. Parent/guardian (for minor participants) or participant gives willing to sign a consent form and/or assent as required by local regulations.
3. Is age 4 weeks or older at the time of consent.
Who Should NOT Join This Trial:
1. Is a foster child or ward of the state.
2. Is a prisoner.
Always talk to your doctor about whether this trial is right for you.
Original Eligibility Criteria
View original clinical language
Inclusion Criteria:
1. Any of the following are true:
1. Currently has a confirmed diagnosis of DMD/BMD based on genetic testing, muscle biopsy, or clinical diagnosis.
2. Currently has a confirmed diagnosis of carrier status for DMD/BMD based on genetic testing.
2. Parent/guardian (for minor participants) or participant gives informed consent and/or assent as required by local regulations.
3. Is age 4 weeks or older at the time of consent.
Exclusion Criteria:
1. Is a foster child or ward of the state.
2. Is a prisoner.
Locations (10)
Arkansas Children's Hospital
Little Rock, Arkansas, United States
CureDuchenne
Newport Beach, California, United States
Children's Hospital of Orange County
Orange, California, United States
Rare Disease Research
Atlanta, Georgia, United States
University of Iowa
Iowa City, Iowa, United States
Kansas University Clinical Research Center
Fairway, Kansas, United States
Corewell Health
Grand Rapids, Michigan, United States
Rare Disease Research Center
Hillsborough, North Carolina, United States
Penn State Health
Hershey, Pennsylvania, United States
Neurology Rare Disease Center
Denton, Texas, United States