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RECRUITINGOBSERVATIONAL

Biological Collection for Marfan and Related Syndromes

Constitution of a Biological Collection to Study the Pathophysiology in Marfan Syndrome and Related Syndromes and to Identify Predictive Factors of Disease Progression

Important: This information is not medical advice. Talk to your doctor about whether a clinical trial is right for you.

About This Trial

The present study will establish a collection of biological samples from Marfan patients or with associated diseases to be used for research purposes only, with due respect for confidentiality.

Who May Be Eligible (Plain English)

Who May Qualify: - Children aged at least 3 years old or adult with Marfan syndrome or related syndromes - Patients affiliated to or beneficiaries of a social security scheme - Patients able to receive information on the progress of the study and understand the information form to participate in the study. That implies to master the French language and not to be subject to a restriction of rights by the judicial authorities - Patients or legal representative who have given their consent to participate in the study (expression of no objection) Who Should NOT Join This Trial: - Patients subject to a legal protection measure (guardianship, curators, or safeguard of justice) - Pregnant or breastfeeding women Always talk to your doctor about whether this trial is right for you.

Original Eligibility Criteria

View original clinical language
Inclusion Criteria: * Children aged at least 3 years old or adult with Marfan syndrome or related syndromes * Patients affiliated to or beneficiaries of a social security scheme * Patients able to receive information on the progress of the study and understand the information form to participate in the study. That implies to master the French language and not to be subject to a restriction of rights by the judicial authorities * Patients or legal representative who have given their consent to participate in the study (expression of no objection) Exclusion Criteria: * Patients subject to a legal protection measure (guardianship, curators, or safeguard of justice) * Pregnant or breastfeeding women

Treatments Being Tested

BIOLOGICAL

collection of samples of blood and urine

extra samples of blood and urine will be collected and stored for research utilisation

Locations (1)

Purpan University Hospital
Toulouse, France