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RECRUITINGOBSERVATIONAL

Longitudinal Study of Ultra-rare Inherited Metabolic and Degenerative Neurological Diseases.

Clinical, Instrumental and Laboratory Data Collection of Subjects with Ultra-rare Inherited Metabolic and Degenerative Neurological Diseases

Important: This information is not medical advice. Talk to your doctor about whether a clinical trial is right for you.

About This Trial

General aim of the study is the improvement of the clinical knowledge of ultra-rare inherited metabolic and degenerative neurological diseases (prevalence less than 5:100,000) in adulthood through the systematic longitudinal collection of clinical, laboratory and instrumental data.

Who May Be Eligible (Plain English)

Who May Qualify: - Age \>= 18 years - Subjects with ultra-rare inherited degenerative and metabolic neurological diseases - Subjects with undiagnosed neurological diseases (when supposed to be inherited) Who Should NOT Join This Trial: - none Always talk to your doctor about whether this trial is right for you.

Original Eligibility Criteria

View original clinical language
Inclusion Criteria: * Age \>= 18 years * Subjects with ultra-rare inherited degenerative and metabolic neurological diseases * Subjects with undiagnosed neurological diseases (when supposed to be inherited) Exclusion Criteria: * none

Treatments Being Tested

OTHER

collection of data

collection of retrospective and prospective data from adult patients with ultra-rare inherited neurological diseases

Locations (1)

Fondazione IRCCS Istituto Neurologico Carlo Besta
Milan, Milano, Italy