RECRUITINGOBSERVATIONAL
Clinical Procedures to Support Research in ALS
Clinical Procedures to Support Research in ALS (CAPTURE-ALS)
About This Trial
The purpose of the Clinical Procedures To Support Research (CAPTURE) study is to utilize information collected in the medical record to learn more about a disease called amyotrophic lateral sclerosis (ALS) and related disorders.
Who May Be Eligible (Plain English)
Who May Qualify:
- Diagnosis of ALS or a related disorder (e.g. primary lateral sclerosis, progressive muscular atrophy).
- Receiving care at a clinical center that uses Epic as its EHR.
- Able and willing to provide willing to sign a consent form (or willing to sign a consent form obtainable from a designated proxy).
Who Should NOT Join This Trial:
- Inability to understand English and/or Spanish
Always talk to your doctor about whether this trial is right for you.
Original Eligibility Criteria
View original clinical language
Inclusion Criteria:
* Diagnosis of ALS or a related disorder (e.g. primary lateral sclerosis, progressive muscular atrophy).
* Receiving care at a clinical center that uses Epic as its EHR.
* Able and willing to provide informed consent (or informed consent obtainable from a designated proxy).
Exclusion Criteria:
* Inability to understand English and/or Spanish
Locations (11)
University of California, Irvine
Irvine, California, United States
Stanford University
Palo Alto, California, United States
California Pacific Medical Center
San Francisco, California, United States
University of Miami
Miami, Florida, United States
University of Kansas Medical Center
Kansas City, Kansas, United States
Hennepin County Medical Center
Minneapolis, Minnesota, United States
Columbia University
New York, New York, United States
Duke University
Durham, North Carolina, United States
Wake Forest University
Winston-Salem, North Carolina, United States
Providence Health & Services
Portland, Oregon, United States
University of Texas San Antonio Health Science Center
San Antonio, Texas, United States