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RECRUITINGOBSERVATIONAL

Rare Disease Patient Registry & Natural History Study - Coordination of Rare Diseases at Sanford

Coordination of Rare Diseases at Sanford

Important: This information is not medical advice. Talk to your doctor about whether a clinical trial is right for you.

About This Trial

CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all rare diseases. This program allows patients and researchers to connect as easily as possible to help advance treatments and cures for rare diseases. The CoRDS team works with patient advocacy groups, individuals and researchers to help in the advancement of research in over 7,000 rare diseases. The registry is free for patients to enroll and researchers to access. Visit sanfordresearch.org/CoRDS to enroll.

Who May Be Eligible (Plain English)

Who May Qualify: - Diagnosis of a rare disease, a disease of unknown prevalence, undiagnosed or an unaffected carrier of a rare/uncommon disease Who Should NOT Join This Trial: - Diagnosis of a disease which is not rare Always talk to your doctor about whether this trial is right for you.

Original Eligibility Criteria

View original clinical language
Inclusion Criteria: * Diagnosis of a rare disease, a disease of unknown prevalence, undiagnosed or an unaffected carrier of a rare/uncommon disease Exclusion Criteria: * Diagnosis of a disease which is not rare

Locations (2)

Sanford Health
Sioux Falls, South Dakota, United States
Online Patient Enrollment System
Sydney, Australia